Makomiti a Zachilengedwe ndi Ufulu Wachibadwidwe adatengera malingaliro awo pakupanga European Health Data Space kuti alimbikitse kusuntha kwa data yaumoyo wamunthu ndikugawana kotetezeka.
Kupangidwa kwa European Health Data Space (EHDS), kupatsa mphamvu nzika kuti zizitha kuyang'anira deta yawo yazaumoyo ndikuthandizira kugawana motetezeka pazofufuza komanso zongoganizira (mwachitsanzo, zopanda phindu), zidapita patsogolo ndikulandila udindo wa Nyumba yamalamulo. ndi makomiti a Environmental, Public Health and Food Safety, and on Civil Liberties, Justice and Home Affairs. MEPs adalandira lipotilo Lachiwiri ndi mavoti 95 mokomera, 18 otsutsa, ndi 10 osamvera.
Chisamaliro chabwinoko chokhala ndi ufulu wonyamula
Lamuloli limapatsa odwala ufulu wopeza chidziwitso chaumoyo wawo m'machitidwe osiyanasiyana azaumoyo a EU (omwe amatchedwa kuti kugwiritsa ntchito koyambirira), ndikulola akatswiri azaumoyo kupeza zambiri za odwala awo. Kufikira kungaphatikizepo chidule cha odwala, zolemba zamagetsi, zithunzi zachipatala ndi zotsatira za labotale.
Dziko lililonse lidzakhazikitsa ntchito zopezera deta yazaumoyo kudziko lonse potengera MyHealth@EU nsanja. Lamuloli likhazikitsanso malamulo okhudza ubwino ndi chitetezo cha deta kwa opereka machitidwe a Electronic Health Records (EHR) ku EU, kuti aziyang'aniridwa ndi akuluakulu oyang'anira msika.
Kugawana deta kuti zithandize anthu onse ndi chitetezo
EHDS ipangitsa kuti athe kugawana zambiri zathanzi, kuphatikiza pa tizilombo toyambitsa matenda, zonena zaumoyo ndi kubweza, deta ya majini ndi chidziwitso cha kaundula wa zaumoyo wa anthu, pazifukwa zokhudzana ndi thanzi la anthu, kuphatikiza kafukufuku, luso, kupanga mfundo, maphunziro, wodwala. chitetezo kapena zowongolera (zomwe zimatchedwa kugwiritsidwa ntchito kwachiwiri).
Nthawi yomweyo, malamulowo amaletsa kugwiritsa ntchito zina, mwachitsanzo kutsatsa, zisankho zochotsa anthu ku phindu kapena mitundu ya inshuwaransi, kapena kugawana ndi anthu ena popanda chilolezo. Zopempha zopezera deta yachiwiri pansi pa malamulowa zidzayendetsedwa ndi mabungwe a dziko, zomwe zingawonetsetse kuti deta imaperekedwa mosadziwika kapena, ngati kuli kofunikira, mawonekedwe osadziwika.
M'malo awo okonzekera, a MEP akufuna kupereka chilolezo chodziwikiratu kwa odwala kuti agwiritse ntchito zinazake zachipatala, ndikupereka njira yotulutsira deta ina. Akufunanso kupatsa nzika ufulu wotsutsa chigamulo cha bungwe lopeza deta yaumoyo, ndikulola mabungwe osachita phindu kuti apereke madandaulo m'malo mwawo. Udindo wovomerezedwawo udzakulitsanso mndandanda wamilandu yomwe kugwiritsidwa ntchito kwachiwiri kungaletsedwe, mwachitsanzo pamsika wantchito kapena ntchito zachuma. Zingawonetsetse kuti mayiko onse a EU akulandira ndalama zokwanira kuti apereke chitetezo kuti agwiritse ntchito deta kachiwiri, ndi kuteteza deta yomwe ili pansi pa ufulu wazinthu zaluntha kapena kupanga zinsinsi zamalonda.
Quotes
Annalisa Tardino (ID, Italy), wothandizana nawo pa Civil Liberties Committee, adati: "Ili ndi lingaliro lofunikira kwambiri komanso laukadaulo, lomwe likukhudza kwambiri, komanso kuthekera kwa nzika zathu ndi odwala. Mawu athu adakwanitsa kupeza malire oyenera pakati pa ufulu wa wodwala wokhala ndi chinsinsi komanso kuthekera kwakukulu kwa data yazaumoyo ya digito, zomwe zimayenera kupititsa patsogolo chisamaliro chaumoyo ndikupanga luso lazaumoyo. ”
Tomislav Sokol (EPP, Croatia), mtolankhani wa Komiti Yachilengedwe, adati: "European Health Data Space ikuyimira chimodzi mwamagawo apakati a European Health Union komanso gawo lofunikira kwambiri pakusintha kwa digito ku EU. Ndi chimodzi mwazinthu zochepa zamalamulo a EU pomwe timapanga china chatsopano pa European mlingo. EHDS idzapatsa mphamvu nzika mwa kupititsa patsogolo chisamaliro chaumoyo kudziko lonse ndi malire, ndipo idzatsogolera kugawana bwino kwa deta yaumoyo - kulimbikitsa kafukufuku ndi zatsopano mu EU. "
Zotsatira zotsatira
Udindo wokonzekera tsopano udzavoteredwa ndi Nyumba Yamalamulo yaku Europe mu Disembala.
Background
European Data Strategy ikuwoneratu kupanga malo khumi a data m'magawo azaumoyo, mphamvu, kupanga, kuyenda ndi ulimi. Komanso ndi gawo la European Health Union dongosolo. Nyumba yamalamulo idapempha kwanthawi yayitali kuti pakhale European Health Data Space, mwachitsanzo pazosankha chithandizo chamankhwala chadijito ndi kulimbana ndi khansa.
Pakadali pano, mayiko 25 ali mamembala pogwiritsa ntchito ePrescription ndi Patient Summary services kutengera MyHealth@EU.
