EP neKanzuru vanotaurirana vakabvumirana pakugadzirwa kweEuropean Health Data Space kurerutsira kuwanikwa kwedata rehutano hwemunhu uye kuwedzera kugovana kwakachengeteka kune zvido zveveruzhinji.
Chibvumirano chenguva pfupi chezvematongerwo enyika cheEuropean Health Data Space (EHDS), chakasvika mangwanani neChishanu neParamende neBelgian Mutungamiriri weKanzuru, chinotsanangura kuti varwere vachakwanisa kuwana ruzivo rwehutano hwavo pamagetsi pamagetsi. EU's akasiyana ehutano masisitimu. Bhiri iri rinopawo vashandi vehutano kuwana data revarwere vavo, zvichibva pane zvinodikanwa pakurapwa, uye varwere vanozokwanisawo kudhawunirodha rekodhi yavo yehutano pasina muripo.
Marekodhi ehutano emagetsi (EHR) angasanganisira pfupiso dzevarwere, zvinyorwa zvemagetsi, mifananidzo yekurapa uye mhedzisiro yerabhoritari (inonzi yekutanga kushandiswa).
Nyika imwe neimwe yaizogadzira masevhisi ezvehutano ekuwana data zvichienderana ne MyHealth@EU platform. Mutemo wacho waizogadzirawo European electronic health rekodhi rekodhi fomati, uye kutsanangura mitemo yemhando yedata, chengetedzo uye kusashanda kweEHR masisitimu ayo anozotariswa nevatungamiriri vemunyika vanoongorora misika.
Kugovaniswa kwedata kune zvakanakira zvakajairika nedziviriro
EHDS yaizobvumira data rehutano risingazivikanwe kana remanyepo, kusanganisira rekodhi rehutano, miedzo yekiriniki, utachiona, zvichemo zvehutano uye kudzoserwa, genetic data, ruzivo rwehutano hweveruzhinji, ruzivo rwehutano uye ruzivo rwezvehutano zvehutano, mashandisirwo uye mari, kuti zvigovane kuti zvifarirwe neveruzhinji. zvinangwa (zvinonzi kushandiswa kwechipiri). Izvi zvikonzero zvinosanganisira kutsvagisa, hunyanzvi, kugadzira mutemo, dzidzo uye kuchengetedza kwevarwere.
Kugovaniswa kwedata rekushambadzira kana kuongorora zvikumbiro zveinishuwarenzi kucharambidzwa. Munguva yenhaurirano, MEPs akave nechokwadi chekuti kushandiswa kwechipiri hakuzotenderwe maererano nesarudzo pamisika yevashandi (kusanganisira mabasa anopihwa), mamiriro ekukweretesa uye mamwe marudzi erusarura kana profiling..
Dziviriro dzakasimba dze data rakajeka
Mutemo unovimbisa kuti varwere vachave nekutaura mumashandisirwo e data ravo uye kuwanikwa. Vanofanirwa kuziviswa pese panowanikwa data ravo, uye vanozove nekodzero yekukumbira kana kugadzirisa data isiriyo. Varwere vanozokwanisawo kuramba kune vashandi vehutano kuwana data ravo rekushandisa kwekutanga, kunze kwekunge izvi zvichidikanwa kuchengetedza zvakakosha zvechinyorwa chedata kana mumwe munhu. MEPs dzakachengetedza kodzero yevarwere kuti vabude mukushandiswa kwechipiri, kunze kwekuda kweruzhinji-, kugadzira mitemo kana nhamba yezvinangwa, uye kuchengetedzwa kwekodzero dzepfuma yeuchenjeri uye zvakavanzika zvekutengeserana apo data rakakodzera rinogoverwa kushandiswa kwechipiri.
Zviremera zvekuchengetedzwa kwedata yenyika zvichatarisa kumisikidzwa kwekodzero yekuwana data yehutano uye ichapihwa simba rekuburitsa faindi kana paine zvikanganiso.
Quotes
Tomislav Sokol (EPP, Croatia), Environment Committee co-rapporteur, akati: "European Health Data Space ichaisa vagari mukutonga kwehutano hwavo nekupa nzira yakachengeteka yekuchengetedza uye kuwana marekodhi ehutano avo anozowanikwa chero kupi muEU. - kusimudzira hutano padanho renyika nekuyambuka muganhu. iyo EHDS ichaitawo kuti kugovaniswa kwehutano hwehutano kuvatsvakurudzi - kuwedzera tsvakurudzo nekuvandudza muEU, uye kuve nechokwadi chekuvandudzwa kwemishonga mitsva. "
Annalisa Tardino (ID, Italy), Civil Liberties Committee co-rapporteur, akati: "EHDS ichabatsira mukupa hutano hwemazuva ano kuvarwere kwese kwese EU. Isu takabudirira mukubatanidza mune zvinyorwa zvakakosha zvinosimbisa zvine chekuita nekuchengetedzwa kwe data rakavanzika remunhu, kunyanya nemukana wekuti varwere vasarudze kubuda kwekutanga uye kwechipiri kushandiswa kwedata ravo rehutano. Panyaya iyi, basa reParamende rakanga rakasimba uye rakatowedzera kuchengetedzwa, asi ruzhinji rwemapoka ezvematongerwo enyika eLIBE anoona kuti chibvumirano chekupedzisira chinobata chiyero pakati pekuchinjana data rehutano pakurapwa uye nekutsvaga kuponesa hupenyu, uye kuchengetedza zvakavanzika zvevagari vedu. ”
Matanho anotevera
europeChibvumirano chenguva chichiri kuda kutambirwa zviri pamutemo nemasangano ese asati apinda mumutemo.
