I-EP kunye nabaxoxisana beBhunga bavumile ekudalweni kweNdawo yeDatha yeMpilo yaseYurophu ukuze kube lula ukufikelela kwiinkcukacha zempilo yomntu kunye nokunyusa ukwabelana okukhuselekileyo kumdla woluntu.
Isivumelwano sethutyana sezopolitiko kwi-European Health Data Space (EHDS), sifike kwangoko ngoLwesihlanu yiPalamente kunye noMongameli waseBelgian weBhunga, sichaza ukuba izigulane ziya kukwazi ukufikelela kwiidatha zabo zempilo yobuqu nge-elektroniki kulo lonke. EUIinkqubo ezahlukeneyo zokhathalelo lwempilo. Lo mthetho uyilwayo unika abaqeqeshi bezempilo ukufikelela kwidatha yezigulane zabo, ngokusekwe ngokungqongqo kwinto eyimfuneko kunyango olunikiweyo, kwaye izigulana nazo ziyakukwazi ukukhuphela ingxelo yazo yezempilo simahla.
Iirekhodi zempilo ye-elektroniki (EHR) ziya kubandakanya isishwankathelo sesigulane, imimiselo ye-elektroniki, imifanekiso yezonyango kunye neziphumo zebhubhoratri (ekuthiwa kusetyenziso oluphambili).
Ilizwe ngalinye liya kuseka iinkonzo zesizwe zokufikelela kwiinkcukacha zempilo ezisekelwe kwi MyHealth@EU iqonga. Umthetho uza kudala ifomati yokutshintshiselana ngerekhodi yezempilo ye-elektroniki yaseYurophu, kwaye uchaze imithetho kumgangatho wedatha, ukhuseleko kunye nokusebenzisana kweenkqubo ze-EHR eziza kubekwa esweni ngabasemagunyeni belizwe lokujonga iimarike.
Ukwabelana ngedatha ukwenzela okulungileyo kunye nezikhuselo
I-EHDS iya kuvumela idatha yezempilo engachazwanga okanye eyenziwe ngomgunyathi, kubandakanywa iirekhodi zempilo, iimvavanyo zeklinikhi, iintsholongwane, amabango ezempilo kunye nembuyekezo, idatha yemfuza, ulwazi lobhaliso lwempilo yoluntu, idatha yempilo kunye nolwazi malunga nezibonelelo zempilo, inkcitho kunye nenkxaso-mali, ukuba kwabelwane ngayo ukwenzela umdla woluntu. iinjongo (ekuthiwa ukusetyenziswa okwesibini). Ezi zizathu ziya kubandakanya uphando, ukusungula izinto ezintsha, ukwenziwa komgaqo-nkqubo, imfundo kunye neenjongo zokhuseleko lwesigulane.
Ukwabelana ngedatha yentengiso okanye ukuhlola izicelo ze-inshurensi kuya kuthintelwa. Ngexesha lothetha-thethwano, ii-MEPs zaqinisekisa ukuba ukusetyenziswa okwesibini akuyi kuvunyelwa malunga nezigqibo kwiimarike zabasebenzi (kubandakanywa nokunikezelwa kwemisebenzi), iimeko zokuboleka kunye nezinye iintlobo zocalucalulo okanye iprofayili..
Ukhuseleko olunamandla lwedatha ebuthathaka
Umthetho uqinisekisa ukuba izigulane ziya kuba nelizwi kwindlela idatha yazo esetyenziswa ngayo kwaye ifikeleleke ngayo. Mabaxelelwe ngalo lonke ixesha idatha yabo ifunyenwe, kwaye baya kuba nelungelo lokucela okanye balungise idatha engachanekanga. Izigulane ziya kukwazi ukuchasa iingcali zempilo ukuba zifikelele kwiidatha zabo zokusetyenziswa okokuqala, ngaphandle kwalapho oku kuyimfuneko ekukhuseleni umdla obalulekileyo wesifundo sedatha okanye omnye umntu. Ii-MEPs zikhusele ilungelo lezigulane ukuba ziphume ekusebenziseni okwesibini, ngaphandle kwezinto ezithile zomdla woluntu, ukwenza umgaqo-nkqubo okanye iinjongo zezibalo, kunye nokukhuselwa kwamalungelo epropathi yengqondo kunye neemfihlo zorhwebo xa idatha efanelekileyo kwabelwana ngayo ukusetyenziswa kwesibini.
Amagunya esizwe okukhusela idatha aya kubeka esweni ukunyanzeliswa kwamalungelo okufikelela kwidatha yezempilo kwaye aya kuxhotyiswa ukuba akhuphe izohlwayo xa kukho ukusilela.
kuchaphulo
Tomislav Sokol (EPP, Croatia), i-Environment Committee co-rapporteur, yathi: "I-European Health Data Space iya kubeka abemi ekulawuleni idatha yabo yezempilo ngokubonelela ngesakhelo esikhuselekileyo sokugcina kunye nokufikelela kwiirekhodi zabo zempilo eziya kufumaneka naphi na kwi-EU. - ukuqinisa ukhathalelo lwempilo kwinqanaba lesizwe kunye nelokuwela imida. i-EHDS iya kuququzelela ukwabelana ngenkathalo ngedatha yezempilo kubaphandi - ukukhulisa uphando kunye nokuveliswa kwezinto ezintsha kwi-EU, kunye nokuqinisekisa uphuhliso lonyango olutsha. "
Annalisa Tardino (ID, Italy), i-Civil Liberties Committee co-rapporteur, uthe: “I-EHDS iya kuba negalelo ekuboneleleni ngokhathalelo lwempilo olukumgangatho ophezulu kwizigulana kuyo yonke indawo. EU. Siye saphumelela ekubandakanyeni kwisicatshulwa ukuqiniswa okubalulekileyo malunga nokukhuselwa kwedatha yomntu ebuthathaka, ngakumbi kunye nethuba lokuba izigulane ziphume zombini ukusetyenziswa kweprayimari kunye nesekondari yedatha yezempilo. Kulo mba, igunya lePalamente lalinamandla kwaye libonelele ngokhuseleko olungakumbi, kodwa uninzi lwamaqela ezopolitiko e-LIBE luqwalasela ukuba isivumelwano sokugqibela sibeka ulungelelwano phakathi kokutshintshiselana ngedatha yezempilo ngonyango kunye nophando olusindisa ubomi, kunye nokukhusela imfihlo yabemi bethu. ”
Amanyathelo alandelayo
I-europeIsivumelwano sethutyana sisafuna ukwamkelwa ngokusesikweni ngawo omabini amaziko phambi kokuba sibe nokungena emthethweni.
