I-Environment kunye neekomiti zeLungelo loLuntu zamkele isikhundla sazo ekudaleni iNdawo yeDatha yezeMpilo yaseYurophu ukunyusa ukuphatheka kwedatha yezempilo kunye nokwabelana ngokukhuselekileyo.
Ukudalwa kweNdawo yeDatha yeMpilo yaseYurophu (EHDS), ukuxhobisa abemi ukuba balawule idatha yabo yezempilo kunye nokuququzelela ukwabelana ngokukhuselekileyo kuphando kunye neenjongo zokungabi nanzuzo (oko kukuthi, kungekhona inzuzo), ithathe inyathelo eliya phambili ngokwamkelwa kwedrafti yePalamente. ziikomiti zokusiNgqongileyo, iMpilo yoLuntu kunye noKhuseleko lokutya, kunye neNkululeko yoLuntu, uBulungisa kunye neMicimbi yeKhaya. Ii-MEPs zamkele ingxelo ngoLwesibini ngeevoti ze-95 ngokuthanda, i-18 ngokuchasene, kunye ne-10 yokuyeka.
Ukhathalelo lwempilo olungcono olunamalungelo okuphatheka
Umthetho uya kunika izigulane ilungelo lokufikelela kwidatha yezempilo yobuqu kuzo zonke iinkqubo zokhathalelo lwempilo ezahlukeneyo ze-EU (ebizwa ngokuba kusetyenziso olusisiseko), kwaye uvumele iingcali zempilo ukuba zifikelele kwidatha kwizigulane zabo. Ufikelelo luya kubandakanya izishwankathelo zesigulana, imigqaliselo ye-elektroniki, umfanekiso wezonyango kunye neziphumo zaselebhu.
Ilizwe ngalinye liya kuseka iinkonzo zesizwe zokufikelela kwiinkcukacha zempilo ezisekelwe kwi MyHealth@EU iqonga. Umthetho uya kuphinda ubeke imigaqo kumgangatho kunye nokhuseleko lwedatha kubaboneleli beenkqubo ze-Electronic Health Records (EHR) kwi-EU, ukuba zibekwe esweni ngabasemagunyeni belizwe lokujonga iimarike.
Ukwabelana ngedatha ukwenzela okulungileyo kunye nezikhuselo
I-EHDS iya kwenza ukuba kube lula ukwabelana ngedatha yezempilo edibeneyo, kubandakanywa kwi-pathogens, amabango ezempilo kunye neembuyekezo, idatha yemfuza kunye nolwazi lwerejista yezempilo yoluntu, ngenxa yezizathu ezichaphazela impilo yoluntu, kubandakanywa uphando, ukuveliswa kwezinto ezintsha, umgaqo-nkqubo, imfundo, isigulane. ukhuseleko okanye iinjongo zolawulo (okuthiwa kusetyenziso lwesibini).
Kwangaxeshanye, imigaqo iya kuthintela ukusetyenziswa okuthile, umzekelo intengiso, izigqibo zokungabandakanyi abantu kwizibonelelo okanye iintlobo ze-inshurensi, okanye ukwabelana nabantu besithathu ngaphandle kwemvume. Izicelo zokufikelela kwidatha yesibini ziya kusingathwa phantsi kwale migaqo ngamaqumrhu kazwelonke, nto leyo eya kuqinisekisa ukuba idatha inikezelwa kuphela ngendlela engaziwa okanye, ukuba kuyimfuneko, ifomathi yenkohliso.
Kwimeko yabo abayilwayo, ii-MEPs zifuna ukwenza imvume ecacileyo yizigulane ezinyanzelekileyo kusetyenziso lwesibini lwedatha ethile yezempilo ebuthathaka, kunye nokubonelela ngendlela yokuphuma kwezinye iinkcukacha. Bakwafuna ukunika abemi ilungelo lokucela umngeni kwisigqibo sombutho wokufikelela kwidatha yezempilo, kwaye bavumele imibutho engenzi nzuzo ukuba ifake izikhalazo egameni labo. Isikhundla esamkelweyo siya kwandisa uluhlu lwamatyala apho ukusetyenziswa okwesibini kuya kuvinjelwa, umzekelo kwimarike yabasebenzi okanye kwiinkonzo zemali. Kuya kuqinisekisa ukuba onke amazwe e-EU afumana inkxaso-mali eyaneleyo yokubonelela ngokhuseleko kusetyenziso lwesibini lwedatha, kunye nokukhusela idatha ewela phantsi kwamalungelo epropathi enomgangatho ophezulu wokuqonda okanye ukwenza iimfihlo zorhwebo.
kuchaphulo
Annalisa Tardino (ID, e-Italiya), i-Civil Liberties Committee co-rapporteur, yathi: “Esi sisindululo esibaluleke kakhulu nesobugcisa, esinempembelelo enkulu, kunye nokubanakho, kubemi bethu kunye nezigulana. Umbhalo wethu ukwazile ukufumana ulungelelwaniso olufanelekileyo phakathi kwelungelo lesigulana kubumfihlo kunye namandla amakhulu edatha yezempilo yedijithali, ejoliswe ekuphuculeni umgangatho wokhathalelo lwempilo kunye nokuvelisa into entsha yezempilo. "
Tomislav Sokol (EPP, Croatia), i-Environmental Committee co-rapporteur, yathi: “I-European Health Data Space imele enye yeebhloko zokwakha ze-European Health Union kunye nesiganeko esibalulekileyo kwinguqu yedijithali ye-EU. Ngomnye wamacandelo ambalwa omthetho we-EU apho sidala into entsha ngokupheleleyo aseYurophu inqanaba. I-EHDS iya kuxhobisa abemi ngokuphucula ukhathalelo lwempilo kwinqanaba lesizwe kunye nelomda, kwaye iya kuququzelela ukwabelana ngenkathalo yedatha yezempilo - ukunyusa uphando kunye nokutsha kwi-EU. "
Amanyathelo alandelayo
Isikhundla esisayilwayo ngoku siya kuvotelwa yindlu epheleleyo yePalamente yaseYurophu ngoDisemba.
imvelaphi
IQhinga leDatha laseYurophu libona kwangaphambili ukwenziwa kwezithuba ezilishumi zedatha kwiinkalo ezicwangcisiweyo ezibandakanya ezempilo, amandla, ukuvelisa, ukushukumiseka kunye nezolimo. Ikwayinxalenye ye IManyano yezeMpilo yaseYurophu isicwangciso. IPalamente kudala icela ukudalwa kweNdawo yeDatha yeMpilo yaseYurophu, umzekelo kwizigqibo kwi ukhathalelo lwempilo lwedijithali kwaye umlo ochasene nomhlaza.
Okwangoku, amazwe angama-25 angamalungu usebenzisa i-ePrescription kunye neenkonzo zesiShwankathelo sesigulane isekelwe kwiMyHealth@EU.
