Abaxoxisana nabo be-EP kanye noMkhandlu bavumelene ngokwakhiwa kwe-European Health Data Space ukuze kube lula ukufinyelela kudatha yomuntu siqu kanye nokuthuthukisa ukwabelana okuphephile ukuze kuzuze umphakathi.
Isivumelwano sesikhashana sezepolitiki se-European Health Data Space (EHDS), esifinyelelwe ekuseni ngoLwesihlanu yiPhalamende kanye neHhovisi likaMongameli waseBelgian loMkhandlu, siveza ukuthi iziguli zizokwazi ukufinyelela imininingwane yazo yezempilo nge-elekthronikhi emhlabeni wonke. EUIzinhlelo ezahlukene zokunakekelwa kwezempilo. Umthethosivivinywa uphinde unikeze ochwepheshe bezempilo ukufinyelela kudatha yeziguli zabo, ngokusekelwe kulokho okudingekayo ekwelashweni okunikeziwe, futhi iziguli zizokwazi futhi ukulanda irekhodi lazo lezempilo mahhala.
Amarekhodi ezempilo ka-elekthronikhi (EHR) azofaka izifinyezo zesiguli, imiyalelo ye-elekthronikhi, izithombe zezokwelapha kanye nemiphumela yaselabhorethri (okuthiwa ukusetshenziswa okuyinhloko).
Izwe ngalinye lizosungula izinsiza zokufinyelela kudatha yezempilo kazwelonke ngokusekelwe ku I-MyHealth@EU inkundla. Umthetho uzophinde udale ifomethi yokushintshisana yamarekhodi ezempilo e-elekthronikhi yaseYurophu, futhi uveze imithetho ngekhwalithi yedatha, ukuphepha kanye nokusebenzisana kwezinhlelo ze-EHR ezizoqashwa iziphathimandla zokuqapha izimakethe zikazwelonke.
Ukwabelana ngedatha ukuze kuzuze bonke abantu ngezivikelo
I-EHDS izovumela idatha yezempilo engaziwa noma engelona igama layo, okuhlanganisa amarekhodi ezempilo, izivivinyo zomtholampilo, amagciwane, izimangalo zezempilo nezimbuyiselo, idatha yofuzo, ulwazi lokubhaliswa kwezempilo yomphakathi, idatha yezempilo kanye nolwazi lwezinsiza zokunakekelwa kwezempilo, izindleko kanye nokuxhaswa ngezimali, ukuthi kwabelwane ngazo ukuze umphakathi uzuze. izinjongo (okuthiwa ukusetshenziswa kwesibili). Lezi zizathu zizofaka ucwaningo, ukusungula izinto ezintsha, ukwenziwa kwenqubomgomo, imfundo kanye nezinjongo zokuphepha kwesiguli.
Ukwabelana ngedatha yokukhangisa noma ukuhlola izicelo zomshwalense kuzovinjelwa. Ngesikhathi sezingxoxo, ama-MEPs aqinisekisa ukuthi ukusetshenziswa kwesibili ngeke kuvunyelwe mayelana nezinqumo ezimakethe zezabasebenzi (okuhlanganisa ukunikezwa kwemisebenzi), izimo zokuboleka kanye nezinye izinhlobo zokucwasa noma ukwenza iphrofayela..
Izivikelo eziqinile zedatha ebucayi
Umthetho uqinisekisa ukuthi iziguli zizoba nezwi endleleni idatha yazo esetshenziswa futhi ifinyelelwe ngayo. Kufanele baziswe isikhathi ngasinye lapho idatha yabo ifinyelelwa, futhi bayoba nelungelo lokucela noma lokulungisa idatha engalungile. Iziguli zizokwazi futhi ukuphikisa ukuthi ochwepheshe bezokunakekelwa kwempilo bathole idatha yabo ukuze isetshenziswe ngokuyinhloko, ngaphandle kwalapho lokhu kudingekile ukuze kuvikelwe izithakazelo ezibalulekile zesihloko sedatha noma omunye umuntu. Ama-MEP avikele ilungelo leziguli lokuphuma ekusebenziseni okwesibili, ngaphandle okuthile ngezinjongo zokuthakasela umphakathi, ukwenza inqubomgomo noma izibalo, kanye nokuvikelwa kwamalungelo empahla yobuhlakani nezimfihlo zohwebo lapho idatha efanele yabiwa ukuze isetshenziswe okwesibili.
Iziphathimandla zikazwelonke zokuvikela idatha zizoqapha ukuphoqelelwa kwamalungelo okufinyelela idatha yezempilo futhi zizonikwa amandla okukhipha izinhlawulo uma kwenzeka kuba namaphutha.
Quotes
Tomislav Sokol (EPP, Croatia), co-rapporteur we-Environmental Committee, uthe: “I-European Health Data Space izobeka izakhamizi ekulawuleni idatha yazo yezempilo ngokunikeza uhlaka oluphephile lokugcina nokufinyelela amarekhodi azo ezempilo azotholakala noma kuphi e-EU. – ukwenza ngcono ukunakekelwa kwezempilo ezingeni likazwelonke kanye neleqa imingcele. i-EHDS izophinde ihlinzekele ukwabelana ngemfanelo kwedatha yezempilo kubacwaningi - ithuthukisa ucwaningo kanye nokuqanjwa okusha e-EU, futhi iqinisekise ukuthuthukiswa kokwelashwa okusha."
Annalisa Tardino (ID, e-Italy), ongumxhumanisi we-Civil Liberties Committee, uthe: “I-EHDS izofaka isandla ekuhlinzekeni ukunakekelwa kwezempilo okusezingeni eliphezulu ezigulini yonke indawo EU. Siphumelele ukufaka embhalweni ukuqinisa okubalulekile mayelana nokuvikelwa kwedatha yomuntu siqu ebucayi, ikakhulukazi nethuba lokuthi iziguli ziphume kukho kokubili ukusetshenziswa okuyisisekelo nesesibili kwedatha yazo yezempilo. Maqondana nalokho, igunya lePhalamende lalinamandla futhi lanikeza izivikelo ezengeziwe, kodwa iningi lamaqembu ezombusazwe e-LIBE libheka ukuthi isivumelwano sokugcina sishaya ukulingana phakathi kokushintshisana ngemininingwane yezempilo ukuze bathole ukwelashwa kanye nocwaningo olusindisa ukuphila, kanye nokuvikela ubumfihlo bezakhamuzi zethu. ”
Izinyathelo ezilandelayo
i-europeIsivumelwano sesikhashana sisadinga ukwamukelwa ngokusemthethweni yizo zombili izikhungo ngaphambi kokuthi singene emthethweni.
