Amakomiti Ezemvelo Nenkululeko Yomphakathi amukele isikhundla sawo ekudaleni i-European Health Data Space ukuze kukhuliswe ukuphatheka kwedatha yezempilo yomuntu siqu kanye nokwabelana okuphephe kakhulu.
Ukwakhiwa kwe-European Health Data Space (EHDS), ukunika izakhamuzi amandla okulawula idatha yazo yomuntu siqu yokunakekelwa kwezempilo kanye nokwenza lula ukwabelana okuphephile ngezinjongo zocwaningo nezinjongo zokungabi nanzuzo (okungukuthi okungenzi nzuzo), kuthathe isinyathelo esiya phambili ngokwamukelwa kwesikhundla sePhalamende esisalungiswa. ngamakomiti Ezemvelo, Impilo Yomphakathi kanye Nokuphepha Kokudla, kanye Nenkululeko Yomphakathi, Ezobulungiswa Nezasekhaya. Ama-MEPs amukele lo mbiko ngoLwesibili ngamavoti angama-95, angu-18 aphikisayo, kanti angu-10 awazange avote.
Ukunakekelwa kwezempilo okungcono namalungelo okuphatheka
Umthetho uzonikeza iziguli ilungelo lokufinyelela idatha yazo yezempilo yomuntu siqu kuwo wonke amasistimu okunakekelwa kwezempilo e-EU (okuthiwa ukusetshenziswa okuyinhloko), futhi uvumele ochwepheshe bezempilo ukuthi bafinyelele idatha yeziguli zabo. Ukufinyelela kuzobandakanya izifinyezo zesiguli, imiyalelo ye-elekthronikhi, izithombe zezokwelapha kanye nemiphumela yaselabhorethri.
Izwe ngalinye lizosungula izinsiza zokufinyelela kudatha yezempilo kazwelonke ngokusekelwe ku I-MyHealth@EU inkundla. Umthetho uzophinde ubeke imithetho ngekhwalithi nokuvikeleka kwedatha yabahlinzeki bezinhlelo ze-Electronic Health Records (EHR) e-EU, ezogadwa iziphathimandla zikazwelonke zokugada izimakethe.
Ukwabelana ngedatha ukuze kuzuze bonke abantu ngezivikelo
I-EHDS izokwenza kube nokwenzeka ukwabelana ngedatha yezempilo ehlanganisiwe, okuhlanganisa amagciwane, izimangalo zezempilo nezimbuyiselo, idatha yofuzo kanye nolwazi lokubhaliswa kwezempilo yomphakathi, ngenxa yezizathu zentshisekelo yomphakathi ehlobene nezempilo, okuhlanganisa ucwaningo, ukusungula izinto ezintsha, ukwenziwa kwenqubomgomo, imfundo, isiguli. ukuphepha noma izinjongo zokulawula (okuthiwa ukusetshenziswa kwesibili).
Ngesikhathi esifanayo, imithetho izovimbela ukusetshenziswa okuthile, ngokwesibonelo ukukhangisa, izinqumo zokukhipha abantu ezinzuzweni noma ezinhlotsheni zomshwalense, noma ukwabelana nabanye abantu ngaphandle kwemvume. Izicelo zokufinyelela idatha yesibili ngaphansi kwale mithetho zizosingathwa izinhlangano zikazwelonke, ezizoqinisekisa ukuthi idatha inikezwa kuphela ngendlela engaziwa noma, uma kudingekile, ifomethi eqanjwe igama-mbumbulu.
Ezimweni zabo ezisalungiswa, ama-MEP afuna ukwenza imvume ecacile ezigulini eyimpoqo ukuze zisebenzise idatha ethile ebucayi yezempilo, futhi zinikeze indlela yokuphuma kwenye idatha. Bafuna futhi ukunika izakhamuzi ilungelo lokubekela inselele isinqumo senhlangano yokufinyelela idatha yezempilo, futhi zivumele izinhlangano ezingenzi nzuzo ukuthi zifake izikhalazo egameni lazo. Indawo eyamukelwe izophinda ikhulise uhlu lwezimo lapho ukusetshenziswa kwesibili kuzovinjelwa, isibonelo emakethe yezabasebenzi noma ezinsizeni zezezimali. Izoqinisekisa ukuthi wonke amazwe e-EU athola uxhaso olwanele ukuze ahlinzeke ngokuvikela ukusetshenziswa kwesibili kwedatha, futhi avikele idatha ewela ngaphansi kwamalungelo empahla yobuhlakani noma akha izimfihlo zohwebo.
Quotes
Annalisa Tardino (I-ID, e-Italy), umxhumanisi we-Civil Liberties Committee, uthe: “Lesi isiphakamiso esibaluleke kakhulu nesinobuchwepheshe, esinomthelela omkhulu, futhi esingase sibe khona, ezakhamuzini zethu nasezigulini. Umbhalo wethu ukwazile ukuthola ibhalansi efanele phakathi kwelungelo lesiguli lobumfihlo namandla amakhulu edatha yezempilo yedijithali, okuhloswe ngayo ukuthuthukisa ikhwalithi yokunakekelwa kwezempilo nokukhiqiza ubuciko obusha bokunakekelwa kwezempilo.”
Tomislav Sokol (EPP, Croatia), co-rapporteur we-Environmental Committee, uthe: “I-European Health Data Space imele enye yezakhiwo ezimaphakathi ze-European Health Union kanye nengqophamlando ekuguqulweni kwedijithali kwe-EU. Ingenye yezingcezu ezimbalwa zomthetho we-EU lapho sakha okuthile okusha ngokuphelele European izinga. I-EHDS izonika izakhamuzi amandla ngokuthuthukisa ukunakekelwa kwezempilo ezingeni likazwelonke neleqa imingcele, futhi izokwenza kube lula ukwabelana ngemininingwane yezempilo ngomthwalo wemfanelo - ithuthukisa ucwaningo nokusungula izinto e-EU.”
Izinyathelo ezilandelayo
Isikhundla esisalungiswa manje sizovotelwa yindlu ephelele yePhalamende laseYurophu ngoDisemba.
Background
I-European Data Strategy ibona kusengaphambili ukwakhiwa kwezikhala zedatha eziyishumi emikhakheni yamasu okuhlanganisa ezempilo, amandla, ezokukhiqiza, ezokuthutha kanye nezolimo. Iphinde iyingxenye ye I-European Health Union uhlelo. IPhalamende kudala licela ukuthi kwakhiwe i-European Health Data Space, ngokwesibonelo ezinqumweni zokuthi ukunakekelwa kwezempilo kwedijithali futhi ukulwa nomdlavuza.
Njengamanje, amazwe angamalungu angama-25 usebenzisa i-ePrescription kanye nezinsizakalo zesifinyezo sesiguli isekelwe ku-MyHealth@EU.
